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Stressful End to an Exciting Beginning Sep 10

Well, today is wrapping up pretty stressfully-mostly because I have a pounding sinus headache-darned allergies!  I was on the phone bunches today getting everything settled for our care at home including supplies.  We’re getting a bit frustrated with our health insurance in getting stuff covered for home care.  I think some battles are ahead of us in that.

Tomorrow we’ll be on the road back to Lanc-not sure what time yet.

We heard the official word from Dr. Thornton that the Cardio Thoracic team (including Dr. Yang) has NOT ruled out the possibility for re-connection!!!  It will require Kevin to be off of chemo for 3 months, and no recurrance of cancer during that time.  Dr. Thornton told us that may be unlikely, but it’s still something that is an option.  It is very intensive and major surgery, so it’s something we’d need to consider should the opportunity arise.

We were a bit surprised to find out that it may be unlikely that Kevin would NOT be off of chemo for at least 3 months.  We thought that there may be a good bit of time that once the cancer clears up a bit, we’d have some time in between treatments (months, maybe years?), but we guess with the aggressiveness of the cancer, it’s not possible.  Either way, we’re continuing to pray for our miracles and for the slower progression of the tumor.

This afternoon Kevin got a CT scan to look at the tumor and to see how things are coming along.  This will also be a good indicator of how his next chemo treatment will be done (options are at home, inpatient at JH, outpatient at JH or maybe even outpatient in Lancaster).  We’re praying we can do it at home and that CT scan shows positive progress.

Continue to lift us up as we leave our bubble here at JH.  We are nervous, yet excited about our future at home.  It will definitely be quite an adjustment, but we are ready to move forward.  It’s just been a VERY LONG day and some frustrating parts.  We’re just ready for the next step and to get things moving forward.

Pray for safety of travel, adjustment to home, relief of stress and anxiety, insurance issues to be resolved, and continued healing of Kevin’s cancer and his body.  Praise God for his strength.

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