So, after a day from..well, you know, we look forward to a night of restoration, peace and calm amidst all this calamity.  The day begin with hope-Kevin was going to get a pedicure to rid himself of some excessive dry skin on his feet caused from the hospital stay, and I hoped it to be a smooth day to run errands together.

But..it was not to be.  Long story short, balls got dropped and I spent 3/4 (no lie) of my time today on the phone with various branches of our health insurance trying to get things sorted out.  Finally, this afternoon, our feeding tube supplies and Hickman supplies arrived.  We were set to FINALLY get started on a 24 hour delayed feeding.

But…there was a clog.  Clog led to several phone calls, some cries of frustration on my part, and a visit to the emergency department where they worked with a tube, some soda, and some meat tenderizer (yes, meat tenderizer) to finally get Kevin’s J feeding tube de-clogged to begin feeding.

Whew, what a day.  I cannot express my frustrations, disappointments, anxiety, and sheer disgust at today.  I am still frustrated beyond belief, but laying my concerns upon the Lord that tomorrow will be a better day and this will merely just be marked as a day from…well, you know.