Today was just plain interesting.  We left for B-More around 11am and arrived around 1 to get Kevin’s bloodwork.  After that was done, we headed over to the other side of the hospital for Kevin’s feeding tube replacement.  We waited…until around 2:15 when we were taken to one of the prep rooms.  There I waited with Kevin until about 3:15 when my stomach just couldn’t handle the hunger pangs.  I checked with the nurse, and went to grab something to eat HOPING they would take him back soon (our appt was for 2pm).

While out, I contaced our oncologist to let them know it was very unlikely we would have time for the chemo after the procedure.  I was told to go meet our oncologist’s nurses to get some questions I had answered and go from there.

I met Maureen, our oncologist’s AMAZING nurse and got all my questions answered PLUS SOME!  After some discussion, and finding out Kevin’s blood work results, it was decided we return on Friday for a blood transfusion (Kevin’s red counts had dropped quite a bit from 2 weeks ago), and do the chemo treatment!  I left her office around 4:30 and headed back over to the radiology waiting room.

..and I waited.  I waited, until someone finally informed me Kevin was taken over to the other part of the hospital.  So, I hiked back over, and waited only to find the radiology waiting room locked.  So, I found a seat and prayed that someone would find me to let me know what was going on!

Finally, around 6:30, Kevin and two nurses rolled out of the radiology area and saw me-YEA!  We headed back over (yet again) to the other side of the hospital for recovery.  Around 8 pm we finally got to leave, and had a good drive home.

So just about 15 minutes ago, we begin to give Kevin his meds and start his feeding.  And nothing works.  The dissolving prevacid tablet, apparently doesn’t dissolve very well because it got caught.  It looks like the zip tie around the entrance to his skin is too tight now allowing flow.  So, I got on the phone, and thankfully, the gentleman who performed the procedure was on call!  He apologized profusely, and agreed to squeeze us in first thing tomorrow to unclog the area before our the blood transfusion and chemo.

WHEW.  As I said, the Devil went down to Baltimore today.  I am grateful Kevin got through the procedure ok, but the sedation did not work and he felt EVERYTHING.  Poor guy.  Not to mention, the previous tube was placed improperly which may have been causing Kevin all his stomach pain.

So, the plan for tomorrow is declog the feeding tube at radiology, head over for blood work, go upstairs for chemo, then blood transfusion, then (if time allows) drive back up to home and then to Ephrata to pick up some of his medical supplies.  What a day we have planned.

Please pray that we can FINALLY move forward and get this straightened out.  Also pray that maybe we can formulas switched to help Kevin’s nausea, if that’s what’s causing it.  Pray for calm and lessened anxiety.  Pray for SMOOTH SAILING.

We praise God for the peaceful, needed rain tonight and for our safe travel home.  We praise God for the answers that we received from Maureen, our wonderful nurse.  We praise God that Dr. O’conor is going to help us move forward with treatment here in Lancaster.  We praise God for each day he grants us on this earth.

So, hopefully, tomorrow, the devil will go down to where he belongs and leave us alone for once!