Well…
WE’RE HOME!
We got the meds under control, and after Kevin got a unit of blood this afternoon, we were finally discharged from LGH! We are just so grateful and relieved to finally be home. It feels good to walk on carpet again and I am positive it will be absolutely euphoric to sleep in our own bed again!
Tomorrow I’ll call first thing in the morning to get an appt time for Kevin’s chemo to be administered tomorrow. The bleeding is under control, and most likely, the bleed is a POSITIVE sign that the tumor is disintigrating. It’s just not a pretty reminder.
I will be making quite a few phone calls tomorrow as the pharmacy couldn’t get our meds approved today at discharge. I had a bit of a “freak out”, but finally was calmed by our great nurse’s aid. Needless to say, they billed the full amount to our hospital bill, and hopefully tomorrow we’ll get some answers about why were weren’t in the system. I imagine it has a lot to do with our insurance turning into Cobra (temporary) status as of 10/6.
Another call will be made to our main oncologist, Dr. Thornton, to see when she wants to scan Kevin again. We would REALLY like to know an official report on what the tumor is doing and where it is breaking down.
I applied officially yesterday for both of us for unemployment. I have no clue if it even has a 1% chance of being approved, but I figured it was worth a shot. I’m also going to be applying for any and all types of government benefits that we can shoot for.
Thanks for all your continued prayers. We hope to not be back at the hospital for a LONG, LONG time. Continue to lift us up, and pray especially that the adjustment goes well, and the logistics of health insurance and benefits gets resolved and answered quickly.
Praise God!