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Cleared from OT! Sep 08

This morning Kev was cleared from Occupational Therapy!!  WAHOO!  We’re just waiting on the ok from PT, and we’ll be set for those things to discharge by the end of the week.  We still need to get everything figured out with home care and with supplies, but we’ll get there slowly but surely.

In other good news, the Saturn is 99% sold!!!!  I am so excited.  A lady test drove it last night, and we should be a go by the middle of the week to have it officially sold.  Praise God.

We’re on our way…more updates coming.

Lazy Sundays Sep 07

Today was uneventful, which is always nice.  In rounds this morning, we found out that we’re definitely heading home this week provided all goes well this week.  One of the Dr’s said Kevin shouldn’t have any problems getting cleared by Occupational and Physical Therapy.  The main thing will be getting a home care nurse to help with EVERYTHING.

We’re starting a very large list of all the supplies we’ll need, the concerns we have, etc, etc.  The list is growing, and we have a LOT of questions to get answered before we feel comfortable heading home.

My parents visited today, and we got to talk more about our move back in with them.  We’re happy to have a great, relaxing place to stay in the interim.

Pray that the people test driving my car tonight will LIKE it, and we can finally get it sold.  That would lift a substantial financial burden from us.

Also continue to pray for smoothness of transitions in the upcoming week.  Volunteers seem to be coming together nicely for the move this Thursday, and the only concern I have is getting the recliner here back to Lancaster.  Provided there are no big storms in the evenings this week, we’ll be fine.

I’m on the hunt for a part time job with benefits.  I’m not sure what’s out there, but I’m putting my applications out.  I’m not sure that I’ll be able to start anything for possibly another month, due to the high probability of us being back here for the last round of chemo before re-evaluation (most likely we’ll be in inapatient for a week of that, but we don’t have any definite on that yet).

Lots of transitions-pray for continued improvement of health, and our miracles.  The Lord’s will be done.

T.S. Hanna, new chairs and beautiful sunsets Sep 06
Kevin enjoying his new chair at the hospital!

Kevin enjoying his new chair at the hospital!

SO happy to be comfortable!

SO happy to be comfortable!

Power truck at Engleside-what went down?

Power truck at Engleside-what went down?

It WAS a field...down by my parents.  Now it's a stream.

It WAS a field...down by my parents. Now it's a stream!

Downed limb

Downed limb

This was the side of the road-now a lake!

This was the side of the road-now a lake!

Downpour

Downpour

AHH-just kidding.

AHH-just kidding.

WAS a field

WAS a field

This is normally what I would call a "crick" now it's a raging river!

This is normally what I would call a "crick", but now it's a raging river!

More "rivers"

More"Rivers"

Pine View Dairy chocolate milk can get you through any drive....

Pine View Dairy chocolate milk can get you through any drive....

Conewingo  Dam

Conewingo Dam

Good Samaritans clearing the road of Hanna debris

Good Samaritans clearing the road of Hanna debris

Tree Limbs Down-wonderful people clearing the road for us

Tree Limbs Down-wonderful people clearing the road for us

Bad accident on I-95

Bad accident on I-95

The sun came out, and with the spray on 95, it was SO hard to see!

The sun came out, and with the spray on 95, it was SO hard to see!

Rainbow!

Rainbow!

Sun through Hanna's clouds

Sun through Hanna's clouds

Great clouds

Great clouds

Beautiful sun through the clouds

Beautiful sun through the clouds

People in Baltimore LOVE Michael Phelps

People in Baltimore LOVE Michael Phelps

Fell's Point Ships

Fell's Point Ships

Cool clouds showcasing the crown at a mosque

Cool clouds showcasing the crown at a mosque

Amazing Sunset from Kev's room tonight

Amazing Sunset from Kev's room tonight

Packing Almonst Done! Sep 06

Thanks to help of some great friends (Shout outs to Emily, Janay, Kristen and Megan) we got about 3/4 of the apartment packed up!  This is quite exciting.

Thursday evening, we’ll need some brawn and some extra trucks for moving the big stuff to my parents in time for our possible arrival home at the end of this week.  If you can help, please message me ASAP!

TS Hanna hit hard-LOTS of rain, downed trees and such, but the drive home was ok thankfully.  I’m spending the evening chilling back at Baltimore after a stomach full of Pine View Ice Cream-YUM!  Kev and I are enjoying some alone time after spending the day apart.

Thanks for everything!

Keep praying for things to go forward and that we get all our questions answered and get ready for the future arrival home.  Pray for adjustments to go smoothly and our continued prayers for God’s will to be done through our lives.  Pray for possible re-attachment of Kevin’s esophagus, and our concerns regarding fertility.

Thank you all-more later!

Day Off! Sep 05

Just wanted to let you know tomorrow I’ll be in Lancaster with NO internet access, so no blog updates.  Hopefully nothing will be too exciting to blog about-we’ll pray!

Be careful tomorrow with TS Hanna coming into town.

Love ya & God Bless

Going Home?! Sep 05

YES.  Well, not today, or tomorrow, but we’re shooting for 7 days from now-by the end of next week!!!!  This is just so cool.  Kevin is walking awesomesly, doing 5 laps in a row tonight, 3 of which were without his walker!  We’re hoping to get a stepper for Kev to use, and with his Wii bowling workouts, he’s getting back in shape very well.  Exciting.

Kevin’s chemo is still doing well and he’s 60 out of 90 for full feeding, which is good.  Things are progressing nicely.

I am mailing the paperwork Monday in hopes of getting Kevin approved for some Canadian Medical Disability.  Pray that we documented everything properly and they approve us!

With us going home next week, I still don’t plan on going back to work for at least a week.  (Or should I say-finding a new job).  We need to get Kevin acclamated to his new home, and I’ll still be playing nurse as well.  I don’t know if our insurance covers home nursing, so we’ll have to see.  Also, I think it’s only another 2 weeks after we’re home that I believe we’ll be back in Baltimore for more chemo treatment.  We’ll just see how things pan out for our new schedule.  In the meantime, I’ll be putting out applications for part time and pull positions with benefits.  Pray something opens up..

Kevin got his recliner today and is LOVING it.  He spent most of the day in it, and it’s so much more comfortable for him to recooperate than the hard as a rock chair here.

Pray for safe travels for me as I head back to Lancaster tomorrow a.m. to sort through stuff at home and begin packing.  It looks like T.S. Hanna is going to hit here hard.

*shout out*  We need BRAWN to move our bed, couch, tv (the heavy schtuff) to my parents place some evening this week.  I’m looking for 4 guys, and possibly one extra truck.  If you have BRAWN and can help us move these things an evening this week, please email me with your phone number and what evening works best.  Thank you!

Thanks for all your continued prayers..

Oh!  Also pray-we have a very interested buyer in the Saturn, so pray that it goes through quickly!

Category: Uncategorized  | One Comment
Why Not? Sep 05

So, this mornings question is why not?  Having to submit this paperwork for Canada disability, I’ve gotten to read some of the Dr’s comments as well as read some of the general information about all that’s been done on Kev.  The general consensus that his esophagus diversion is permanent.  Just like his infertility is most likely going to happen.  *shrugs* and we’re saying-Well, Kev wants to eat again at some point in his life, and we want to have children, so why not?

So, please, add those two things specifically to your prayer list.  Again, we’ve said before that we do NOT embrace statistics or beleive in them.  We refuse to be a statistic, we are the Boitsons!  So please lift these two concerns up specifically.

Today is the big “what if” day to see if Kevin can drink more than clear liquids officially (chocolate milk, ice cream and such).  He’s REALLY REALLY hoping so.  The only reason that wouldn’t happen, is their fear of things getting stuck in the tubing and the esophagus.  We are truly praying that God’s plans leads us towards these “freedoms”, although let me not underestimate how ecstatic we are that God has brought Kevin through this thus far.  However, as Kev said last night, he’s grateful to be alive, but to be told he has to LIVE with this esophagus diversion is devastated.  So he ain’t beleivin it! (think people who told they’ll never walk again, and then miraculously do!).

Kev’s potassium is a little high this morning, but they’re going to do an EKG and get some blood samples just in case to make sure things are ok.  It’s most likely from the fact that he’s getting “double” feedings right now.  He’ll be at full capacity feeding today, which is awesome!

Also today Kev is getting his “throne”-aka, recliner chair.  He’s psyched because with his massive weight loss (about 55 lbs in just 2 months) the chair in here offers no support or comfort.  So we’re movin up.

Thinking of you…love you all.

Category: Uncategorized  | 2 Comments
Stand Up to Cancer Sep 04

http://su2c.standup2cancer.org/theshow

Tune into any of the major US networks (NBC, ABC, & CBS) at 8pm ET on Friday, September 5th for the Stand Up to Cancer special!

What a Great Day! Sep 04

For the first time through this trial, Kevin told me he is feeling GREAT.  That just makes me smile all over.  His feeding is increasing, and he is set at almost 1/2 what a normal feeding would be, which is just great!

He’s tacking a nap today, and earlier we enjoyed a surprise visit from my sis.  That was great!  We just caught up, and played some bowling on the Wii.  Fun times.

Not much planned for this evening-Dr. Kendra stopped in to pick on us for a bit, and informed us that the number one suspicion of the bleed out from last week is still the tumor.  The second possibility is that when the tumor shrunk, it left holes in places where there shouldn’t be, and that caused the bleed.  They’re learning towards the first scenario, but frankly, they’ll never know.  For now, he’s stable, and it looks like it should stay that way barring no big surprises!

Kevin is almost ready to be cleared for non-clear liquids which is great.  Which means..CHOCOLATE MILK.  He’s been craving it like crazy, so we sneaked him a glass today (at the Ok of the Dr. until the official team oks it), and it was heaven.  We got to talk more about life on the “outside” and how it will be adjusting to eating out, family dinners, etc.  One day at a time.

Tonight I think the plan is to just chill-tomorrow, the CHAIR is arriving, which Kevin is quite excited about.  His goal is to add 1 more lap a day as well to his walking routine, and already today he was up to 4 laps in a row!  Wahoo!

Good day..thanks for all your prayers and continued support.

Category: Uncategorized  | 3 Comments
Thirsty Thursday Sep 04

..WHEW IT’S HOT!  It’s gonna be 93 today-lottsa water!

Good night for both of us thankfully.

Kevin’s first feeding went well, and his chemo is going well also.  His hair is slowly flaking off everytime we rub it.  Not sure when/if it will all fall out, so we’ll see what happens there.  He’s still having some abdominal pain, but that’s about it for pain, which is nice!  We’re just enjoying relaxation and seeing where we go from here.

Not sure what the plan is today-probably not much because Kev is on chemo.  More laps around the halls I’m sure, and some video games.

Thinking of you all..!