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Angiosarcoma Aug 12

Welcome to the new chapter of our life book, titled, “ANGIOSARCOMA”.  Yes, the biopsy resuls are in, and this is what Kevin has.  It is a blessing to have some answers, and an anxiety to have uncertainties.  Either way, we feel positive about FINALLY having some direction!

Here is what we know:

Angiosarcoma is a tumor that develops in the blood vessels and connective tissue.  In Kevin, it runs from his mouth to his stomach.

The path features show that the tumor is dividing fast and they would like to begin immediately treating him with chemotherapy.  This is normal for the type of cancer-from what little, reliable information there is on the web, it is a very progressive cancer.

Kevin was moved to the 5C part of the Weinberg building tonight to prepare him for chemotherapy.

Dr. Thornton is the attending physician on this floor all week.  She is known as the “Sarcoma Guru”, and I know the Lord placed her in our path for a reason!  She is going to transfer Kevin to directly under her care, which is a huge blessing to us.

It is very difficult to say what lies ahead, but she is an expect and will help us.  Tomorrow morning, they are having a sarcoma conference to discuss Kevin’s treatment plan.  Afterwards, during rounds, we will meet her and get an official plan book from her between 8-11 am tomorrow.

This is what we know.  Whatever news we receive tomorrow, we will receive with OPTIMISM.  We have a direction, and no matter what numbers come out to say, we know the Lord performs miracles DAILY and with all of our prayer, how can he not listen?

We are a famiy that will NOT, and I repeat, WILL NOT listen to statistics.  So stop googling Angiosarcoma.  I did it already, and frankly, Kevin’s particular case wasn’t found ANYWHERE on google.  It seems most angiosarcomas occur in the heart, breast and skin.  So Kevin’s case is even more rare than the current statistics.  This makes him an excellent candidate for research and I know having the “Sarcoma Guru” by our side to lead the way, that God will direct her and her team to SUCCESS.

So, stop googling.  Seriously 🙂

Start praying instead.

Tomorrow will be a long and interesting day.  I don’t know where this leads us with anything else, especially the vent, but we’re following God’s lead on this one.  Join us!

Please, POST POST POST away, because I want to go to Kevin tomorrow morning with, like, I don’t know-100 MESSAGES to read to him?  Ok?  Give us SO MANY MESSAGES that I don’t even have time to read them all.  Flood God’s inbox with so many prayers, he’ll have no choice but to say, OK, KEV’S GONNA BE HEALED!  Ok, so I may be a bit ridiculous, but I’m a bit serious too.

The Lord does amazing things during amazing times.

We met a couple tonight who’s staying the same house as us and are entering this week into Pancreatic cancer surgery.  I believe his name is Merle up tonight too, ok?

While you’re at it, lift us all up, as we need God’s positive energy in us right now more than ever.

Lift Kevin up not only in physical healing, but in mental preparation.

Lift the team of Doctors up in their planning meeting tomorrow.  Touch their hearts to know ours.

My prayer….pray with me…

Lord, we know it is because of you that you opened those doors to get the biopsy results back in a timely manner.  We know that you placed Dr. Thornton on the ocology floor this week to be heading Kevin’s treatment.  We know that you are opening these doors for Kevin to begin healing.  You are the worker of miracles, the King of Kings, the director of all.  We pray to you Father tonight, asking you to bless Kevin’s body.  We know he is aching in ways we cannot understand, and we pray for you to lift that physical, mental and spiritual anguish.  Cleanse him of his cancer, cleanse him of his pain, cleanse him of his uncertainties and fill him with a desire to push on and become a new, POSITIVE outcome from sarcoma.  The road that lies ahead is going to be difficult and trying, and unimaginable at times.  But Lord, we know with your direction, and with all the prayers that are filling your heart right now, we know that it is you Lord who can provide those windows of opportunities.  We are not worthy, but we ask for your mercy and grace on us.  We ask that our lives can be a beacon of light to those around us.  We ask for you to continue to touch the lives around us, through us.  We are your vessels Father.  We are your kingdom, and we will be that light to you.  Direct us Lord to say and do the right things in a manner that pleases you Father.  We lift you up so greatly and thank you, and thank you, and thank you.  We are not worthy, but we thank you for the miracles you are performing.  Lift up our housemate, Merle, and his wife and family Lord.  We know they are tired, and weak and aching for you Father.  We ask you to touch his body and heal him of his pain.  Bring peace and understanding to them Father, and open up doors for us to reach out to him.  You are the one and only, the Price of Peace and the Master of ceremonies.  Bless us Father.  Bless us and open up doors of miracles to everything around us.  You are wonderful.  We thank you.  In your holy name we pray, Amen.

PS-in regards to the messages, I know there are about 900 a day lurking out there, so leave some love!  Thanks.

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21 Responses

  1. 1
    Kristen Hess 

    HEY HEY!!!! With a diagnosis comes a cure!! This is amazing. God answers prays and Kevin will get better! His “personal respiratory therapist” says not to worry about the ventilator. That will come with time. Just worryabout kicking some tumor-ass!!

  2. 2

    YEAH WHAT KRISTEN SAYS….KICK SOME TUMOR ASS!!! you guys are so strong, you will pull through. we are all here praying and routing for you! Lots of love..!!

  3. 3
    Robin Kanagy 

    Kevin and Brenda: You have been on our minds and in our prayers lots over these past two + weeks. What I’ve learned through experiences of my dad and niece having cancer is that God was, is and always will be in control. It is not our will, but His that will be done. He has created both of you for each other, with a purpose and a plan, so let Him fullfil it in you for such a time as this. And while you are waiting on Him, worship Him despite the circumstances and the emotional/spiritual highs and lows. FFH’s song, Worship in the Waiting, has been my theme song during my niece’s fight with a brain tumor. We will continue to pray for you as the Lord leads. Love and blessings of peace and rest, Robin

  4. 4
    Daniel & Becky 

    First of all, how did you know that we would all want to Google it? 😉
    That is wonderful that you finally have some direction in this mess and God’s heart will be flooded with prayers.
    Our thoughts and prayers are with you both.

  5. 5
    Kristen Hess 

    I didn’t see the other post. Those 1 hour trials on the vent are awesome!! You will build up a lot of strength in your breathing muscles and hopefully an extubation is in your near future!! Great job!!

  6. 6
    Lou and Joni 

    Yea, kick some sarcoma butt, pg rated saying.

  7. 7
    Suzanne and Stan 

    Kevin and Brenda,
    You are in our thoughts and prayers throughout each day!! This past Sunday we asked our church here in Terrace to pray for you. Know that you are being lifted up to the Lord here in B.C. Love you!

  8. 8
    Trent & Emily Hess 

    Hi Kevin & Brenda,
    You’ve both been in our thoughts and prayers. We’ve been praying from the beginning for a full recovery for Kevin. I refuse to google sarcoma, because I’m trusting in God’s will, and believing that His will is a cure for Kevin. Brenda, I’ve been encouraged by your posts and your positive attitude. God is definitely working in your situation.
    On a lighter note, Kevin, you look pretty awesome with the beard. You should have tried growing one earlier. I’m looking forward to having Kevin serve me tea again sometime soon, so hurry up down there would ya? Let me know if there is anything I can do for you two. We’re praying!!

  9. 9
    Mrs. J 

    OK…no googling…I promise. You both are surrounded by guardian angels and will come through this stronger than you ever thought possible.

    “90 Minutes in Heaven” is a book that was recommended to me when Dick was in the ICU, and it helped to see things through the eyes of the patient. If you haven’t read it, it may give you some insight and encouragement.

    Tell Merle and his family that there are prayers coming from Pennsylvania for them, too! And for all those families who are not yet able to vacate a room for you…

  10. 10

    Ok Brenda you anti-googler…I didn’t google angiosarcoma but I did google Dr. Thornton. I feel really confident that Kevin is getting the absolute best care and treatment available to him. Add that to his amazingly positive outlook, the love and support of many many people, and bombarding God’s inbox with prayers…..I think that equals kicking some sarcoma butt!

  11. 11

    “Ask and it will be given unto you, seek and you will find, knock and it will be opened unto you. For everyone who asks receives, and he who seeks finds, and to him who knocks it will be opened. Or what man is there among you who, when his son asks for a loaf, will give him a stone? Or if he asks for a fish, he will not give him a snake will he? If you then, being evil, know how to give good gifts to your children, how much more will your Father who is in heaven give what is good to those who ask Him!” Matthew 7:7-11
    “Then He said to them, ‘Suppose one of you has a friend, and goes to him at midnight and says to him, ‘friend, lend me three loaves; for a friend of mine has come to me from a journey, and I have nothing to set before him.” and from inside he answers and says, ‘Do not bother me; the door has already been shut and my children and I are in bed; I cannot get up and give you anything.’ I tell you, even though he will not get up and give him anything because he is his friend, yet because of his persistence he will get up and give him as much as he needs. For eveyone who asks, recieves; and he who seeks, finds; and to him who knocks, it will be opened.” Luke 11:5-10
    K E E P K N O C K I N G !!! Love you guys, hang in there! -Justin RN/LGH

  12. 12

    I just wanted to let you guys know you have my prayers!
    Kevin, I only met you once (at Lou’s for UFC) but I feel God allows EVERYTHING to happen for a reason, and HE will carry you through this! Keep your faith strong.

  13. 13
    Nikki and Nolan 

    We pray for you 2 every day hunny! Good luck and now that you know what it is, as other people said, He can kick some tumor ass!! Love you and thinking of you!

  14. 14
    Angela and Hans 

    Yes! We serve a great God and I know He is going to be great in your situation. Keep persisting Brenda and Kevin. We are standing with you and we love you!

  15. 15
    Melanie Kendig 

    Hi Brenda! I am sooo glad to hear the results are finally in and the waiting game is over! And what a Miracle to be placed into the hands of an excellent doctor. My prayers and thoughts continue to be with you and Kevin constantly! Love ya!

  16. 16
    Kelly Graham 

    Your faith and optimism are so inspiring! I am thinking of you every day.

    Hey Bren–for whatever interview you’re supposed to do regarding immigration and making sure you married for love–I vote you just send them the link to your blog! How could they deny your love?!

    Love the new motto: Kick some tumor ass!!

  17. 17
    Danielle Marsh 

    Kevin, you are my hero! Brenda, you are my hero! I continue to be in awe of both of you each and every day, of your strength, your faith, your optimism, your passion for life, your passion for each other, your love for each other and your love for the Lord! I know that he will bless you both with the strength you need to get through this trying time and for Kevin, a cure! Kevin, I just believe with everything I have that you will be healed and will continue to live a full healthy life with Brenda! My husband Jeff and I continue to think about, talk about, pray about you daily! Even through this battle you are facing, I hope you both know how much you have inspired Jeff and I (along with everyone else that reads your blog, I’m sure…) and have truly given us…me…a boost and new energy in our faith! Please continue to remain strong and know that you are lifted in thought and prayer everyday! Kevin, Brenda…continue to amaze!!

  18. 18
    Amanda (Harnish) Kneisley and family 

    Hey guys! We have been praying and thinking about both of you every day!
    I have been so encouraged to see what faith in God you both are having! I can’t wait to see what miracles God does through all this!

  19. 19
    Carol Hainsworth 

    Brenda and Kevin, please know that you are constantly in our prayers. At last you have an answer and now can move forward to treatment and recovery. Please know that you have a multitude of friends back here in Manitoba praying for you every moment of every day. Brenda, please tell Linda we are thinking of her and keeping her close in our heart and our prayers as well.

    Gary and Carol Hainsworth

  20. 20

    hi Kevin ! Hi Brenda! I write you from Milan, ITALY. MY mom has angiosarcoma in the stomach and lungs. It was diagnostic 2 years ago. She took e lot of chemio and…the tumor has stopped!!!!! I don’t know how it will be next months and years of course but I suggest
    Be strong, Pray, and try to continue a normal life, this for my mom has been the mosto importandt medicina.
    I AM WITH YOU!!!!!! All the best, Cyndi

  21. 21

    Hello Brenda,

    I was googleling angiosarcoma and came across this blog. I have a friend who was recently diagnosed with it in his heart and lungs and has spread to his liver as well. Not sure what the prognosis is but I was very encouraged by your steadfastness in faith. God is in control of all things. Your faith is shining and truly beautiful. This is a late post and I don’t know what happened but I pray all is well with you and Kevin. God bless you!

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