I am busy doing my new “job” online of angiosarcoma research, connection, support.  I am trying to equip myself with as much knowledge as I can to see if we can find out more about angiosarcoma support and awareness.  In the same token, finding knowledge about esophagectomies that have been left un-connected to the stomach is almost more rare than finding information about angiosarcoma support.  It’s an interesting new, investigative life.

Kevin is dozing in and out due to his high meds.  We had the ostomy nurse here, and hopefully the new bag setup will work-still no good solution for the esophagostomy bag 🙁

We are waiting to head down to get the CT scan-should be shortly.  I’m going along to sign consent and share my support with Kev.  His pain level is decreased, but he’s very delirious right now from the medication.  They injected him with the dye, and will take a full scan of his entire upper half.  This will also allow them to see what’s happening with the tumor.  They did not anticipate doing a scan this early, but with the other issue arising, they want to scan the entire area all at once to see what’s happening.  It’s still very early in his treatment, so we were told “not to get our hopes up (ha-how that phrase comes around again)”, but I smile to think of God’s assurances and protections.  At minimal, we are praying for God’s miracle to at least stop the tumor from growing.

Pray with us…