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July 22 Thoughts-Waiting Jul 24

I walked into that waiting room thinking, “More time off of work…I hope they find out what is causing my husband so much pain…let’s treat it and get on with our lives…I can’t wait until we get to the beach again…” and I left that waiting room thinking, “Everything has completely changed” and saw the world through a whole new set of eyes.

I never planned nor wanted to see this new life. I don’t believe anyone wishes to enter a room and hear such devastating news. We always hope and expect the best, while in some ways, preparing for the worst.

My husband, Kevin, had been suffering for almost 3 weeks with severe pain while swallowing. While on vacation visiting family in Winnipeg, Manitoba, we called the doctor’s office several times concerned we would have to visit the hospital due to Kevin’s pain level. But he held through and when we got back to Lancaster, Kevin went to see his doctor. Thinking it was a severe case of esophagitis, his doctor continued to prescribe acid reflux medications.

The following day Kevin’s pain was extremely severe, and the doctor got us into see a gastroenterologist. The nurse practitioner, along with consulting the doctor, put Kevin on stat to get several tests done.

The next day I was waiting in the procedure room for the results of the stat endoscopy. The Dr. sat us down after Kevin finally received some pain medication and told us that he found a mass he highly believed was cancerous. He assured us we would be at the top of everyone’s lists to get several important tests done that would tell us what stage the cancer was in, as well as what treatment options would be best.

After all the tests were done, we went home and just embraced knowing that we had a very tough road ahead, but that we would stick together no matter what the outcome.

The following 48 hours were emotional, numbing and just difficult to adjust to our new way of life. My husband is currently unable to work due to his level of pain, and the side effects of his pain medication. He has lost over 16 lbs in a matter of weeks due to lack of proper nutrition. We face a tough journey ahead of exams, treatment and financial woes.

We are blessed to have a great support system of family and friends. We are blessed to have good health coverage, but still fear the possibility of health coverage change. We are blessed that I am in a job that is willing to work with my upcoming varying schedule. We are blessed.

…but we are scared and pulling together to revive our faith in God above to support and strengthen us through this time ahead.

I think we have both adjusted as best as possible to this new way of life as we await all the results of the tests, and wait for two very important tests to be done: P.E.T. Scan and an Endo-Ultrasound. Both will help the doctors know more about the cancer and where it is.

The next weeks and months ahead are going to be very tough, but with faith, hope and love, we’ll do just fine. We both have extreme faith in one another, and I know Kev will beat this.

We ask for your prayers and also help as we organize a fundraiser BBQ to raise money for medical costs that aren’t covered, and help with living expenses since Kevin cannot work and has no disability coverage.

Thank you for all your thoughts…

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One Response

  1. Brenda, I’ve been reading what is going on, and at first I was thinking what I can do to help. What comes to mind is what I had to do when I was unable to work due to almost losing my daughter while pregnant. Did your Husband choose to get STD? (short term disability) there is also long-term too. At my job it was offered with the insurance, an extra few dollars a month. It basically started when I was determined “disabled” and helped a good bit. I know it won’t be the full amount that you two were used to getting but it sure does help. It takes the highest pay you had in six months and averages it out somehow. Let me know if that is an option for him, hopefully he elected for it when offered. If not, I will keep you two in my thoughts, especially him, I can understand what is going on due to my older sister going through Thyroid Cancer. Stay strong, I know you two will make it. Also, thumbs up for good insurance!

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