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Feeding Issues Sep 21

Well, the feeding issues are still pretty unresolved.  I’ll definitely be making a call to Dr. Thornton tomorrow to see what the recommendation is.  We had to back down on the feeding from 125 to 115 because of Kevin’s severe stomach cramping.  If he is unable to go up on the feeding setting, that just means less time off of the pump, and more time carrying it around.  Not a huge deal, but it does limit his freedom so it would be nice to get it up a bit higher.  The stomach issues seem to be the only problem right now-everything else is settling in well and we’re enjoying our time together.

Tomorrow I’m heading to the Willow Valley for their job fair-I applied for a position as Dining Room Supervisor (for those who know me, this will be my 4th time going BACK to the WV-go figure!).  It’s not the most glamorous, but I’m hoping the hours will offer a bit of flexibility, and their benefits are very good, which is most important to us.  I also applied for a customer service position at Sight and Sound, which would be another great position to have.  I have a lot of other applications and resumes out, but these are probably my top two picks.  Pray the doors open so I can start a new job by early October!

Tomorrow we also plan to start going back to the gym very slowly.  Pray Kevin has the energy and doesn’t get frustrated by this. We are hoping this will be a good thing and will help his energy increase.

Wednesday we meet with the local oncologist to see if he’s willing to work with Dr. Thornton to get the chemo treatments here in Lancaster.  I am praying a home care company will agree to set it up right here in our home, but not many are willing to do it.  Hopefully something opens up so we don’t have to make weekly trips to get it done.

It’s going to be a busy week ahead, but we’re hoping to get to the beach for a day either on Tuesday or Thursday, and possibly again over the weekend depending how Kevin is feeling.  Lots to do, hoping it all works out.

God is providing amazing opportunities for us, and we were so blessed to just hear of a gentleman who had Angiosarcoma of the brain and is 7 years remission!!!  We are also talking with another girl who has Angiosarcoma in her heart and lungs and is responding well to different types of chemo.  We are praying we continue to meet Angiosarcoma survivors that are truly inspiring us.

Pushing on, praying for a good Sunday.  Leave some love!

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