Angry and Heading to Hopkins!

Well, we got clears from the Infectious Disease and Cardiac doctors that Kevin is very stable.  The plan is to keep doing what they're doing, ween him off the heart medications, and take a CT scan of his body tomorrow to see how the chest tube drainage is working.  They also want to do a drain via needle of the fluid in his stomach to give him some relief there, and to start him on TPN (IV) feedings because it is too risky right now to do regular tube feedings.

Why I'm angry?  Because the oncologist on call this weekend feels there is nothing more that can be done (on THEIR side), and so after speaking with the internal medicine doctor, we're going to get him transferred to Hopkins ASAP.  The thought is that LGH just doesn't know enough about Kevin's case/condition to be able to adequately treat him beyond what they have already provided.

So, first thing tomorrow, I'll be on the phone with Dr. Thornton to get the transfer starter.  Pray that our COBRA application comes tomorrow so we can get this set up ASAP as bills are escalating fast and will be a nightmare to get sorted through.

Also pray for continued stability for Kevin to be able to handle the transfer to Hopkins tomorrow. Be with us as we pack and get ready for the trip, and that we'll have a place to stay.

Thanks for your continued support-WE'RE NOT GIVING UP!